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Bill Anthony General Research Fund Honoring Bill Anthony, PhD, considered the father of the Recovery Movement, this fund is dedicated to research and program development focused on expanding the availability of effective recovery programming.

Bill Anthony General Research Fund

Supporting some of the most exciting and important independent research being done today

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More Infor
  • 2011

    $103,880 underwrites the Collaborative Pathway Project
  • 2016

    total raised for Open Dialogue adaptation project tops $500K
  • 2017

    total raised for Hearing Voices in the US tops $500K

A fund ready for donors. Early psychosis treatment is a key component of making recovery the new mainstream, and it is just one of the research areas supported by this fund named in honor of Dr. Bill Anthony. ABC anchorman Ted Koppell characterized Anthony’s work at Boston University as a model program: “a small beacon of sanity in dealing with [these] problems.”

Collaborative Pathway: Early Psychosis Treatment

The Collaborative Pathway project, led by Chris Gordon, MD, changes the trajectory of young people encountering the mental health system from disability and chronicity to recovery-oriented self-direction. The person in crisis and their families are included in treatment decisions from the start, using clear, everyday language to make decision-making accessible.

The Collaborative Pathway (CP) uses an existing, state-of-the-art, recovery-oriented mobile crisis team to deliver services in the home whenever possible, avert unnecessary hospitalization, and build on the strengths and preferences of the person and family.

CP includes shared decision-making and informed choice about neuroleptic medications. It applies “collaborative psychopharmacology” principles, honoring the option of using little or no neuroleptic and opting for benzodiazepines for symptomatic relief of anxiety/insomnia, if these are the person and family’s preference. Such neuroleptic minimization /delay has been shown to have no long-term negative consequences, allowing individuals and families time to collaborate on treatment decisions.

CP slows down treatment by working with the person and family in a safe, “holding” network, offering more treatment choice and defusing alienation and “non-compliance.”

A Collaborative Pathway team with clinical training and training in using research instruments for capturing outcomes is being developed. Research staff are being added and IRB approval from the Department of Mental Health is expected. The project is anticipated to show that engaging young people with early psychosis in fully informed consent and shared decision-making about all medication can be accomplished safely.

Outcomes should be as good, or better, than standard care in these ways:

  • number of adverse events;
  • days of hospitalization;
  • days of work or school;
  • satisfaction with services;
  • a sense of agency in one’s own care; as well as
  • greater adherence and
  • less need for neuroleptic medications.

Adapting the Open Dialogue Model in the United States

Overseen by Dr. Doug Ziedonis at the University of Massachusetts Medical School, this project will create tools for implementing and evaluating the Open Dialogue approach in the United States. Additional funding will allow the research team to develop the full practice manual and the full set of fidelity scales for clinicians, program leaders and researchers.

These materials will include a written description of the approach, training and pilot implementation, and feedback obtained through supervision and other methods. They will lead to clinical studies of specific populations, such as transitional age youth or those experiencing first-break psychosis. They will also enable organizational change studies of systems, clinicians, and clients in a wide range of clinical cases.

Evaluating Children’s Care

Evaluation of proposed national quality standards for children’s mental health care, led by Michael Murphy, EdD, Massachusetts General Hospital, and Lee Baer, PhD, Harvard, author of Getting Control and The Imp of the Mind.

Alternative National Guidelines for Treating Attention and Depression Problems in Children: Comparison of Treatment Approaches and Prescribing Rates in the United Kingdom and United States, Harvard Review of Psychiatry, April 14, 2014.

Long-Term Use of Antipsychotics for Schizophrenia

Over the last 30 years, Dr. Martin Harrow, PhD, Professor (retired) and Director of the Psychology Department of Psychiatry, University of Illinois College of Medicine, has collected data from over 1000 interviews from people who have lived experience with mental illness.  His research has been the basis for a number of papers delineating the effect of medications on those he interviewed.

Further analysis of the data will answer several questions that will provide the basis for a series of important papers to better understand the long term effects of anti-psychotics in the treatment of schizophrenia. The first two papers in the series are:

Does Long-term treatment of Schizophrenia With Antipsychotic Medications Facilitate Recovery?, Schizophrenia Bulletin, March 2013.

Does treatment of schizophrenia with antipsychotic medications eliminate or reduce psychosis? A 20-year multi-follow-up study, Psychological Medicine, 2014.

 

Please support independent research by donating to the Bill Anthony Fund.

 

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