HOPEnDialogue: An International collaborative multicentre research to support the Open Dialogue Learning Community and evaluate the effectiveness of Open Dialogue in various mental health care contexts around the world
This year (2019), the Foundation for Excellence in Mental Health Care has funded the HOPEnDialogue research project to promote and assess the fidelity of Open Dialogue practice and evaluate its effectiveness internationally. HOPEnDialogue, coordinated by the Italian National Research Council, is inspired by and linked to the ODDESSI-study, the first randomized trial of Open Dialogue, ongoing in the UK.
An International Advisory Board involving different stakeholders such as researchers, peer supporters, family members, trainers, Open Dialogue professionals, and experts in public health from eight different countries will contribute to the development of the project and promote its sustainability.Read More
BANGOR, Maine – A cutting edge study on the effect of micronutrients as a supporting treatment for bipolar disorder is currently underway in Bangor, Maine, led by Lewis Mehl-Madrona, MD, at Northern Light Family Medicine and Residency.
“The purpose of this trial is to determine whether a 36-ingredient micronutrient supplement (primarily vitamins and minerals) and fish oil (omega-3 fatty acid) supplement improves nutritional status and allows lower doses of conventional medications to be effective for bipolar disorder with fewer side effects, when studied under randomized and fully blinded conditions and compared to a placebo.
A follow-up open label phase will allow all participants, including those previously taking the placebo, to try the active micronutrient treatment for an additional twelve months.
The objective of this study is to assess the effectiveness of a micronutrient supplement + fish oil compared with placebo. To achieve this, the study needs a total of one hundred subjects who complete the first twelve months of the study. The prevalence of this disorder in the general population is only 3% and it has been difficult to recruit sufficient subjects. Researchers need to recruit and enroll an additional fifty people in the study. All participants must live in the vicinity of Bangor, Maine. Those interested in enrolling in the study should contact Edwina at 207.973.9013.
Once the study participants complete the first twelve months of the randomized study they will transition onto the open label phase of the study. This is less intensive but will still involve quarterly check in, data collected and the micronutrient supplement + fish oil dispensed to participants by the researchers.
Our hypothesis is the micronutrients and fish oil improves nutritional status and as we do not know the nutritional baseline of participants at the start the study, the longer we can follow the participants the better we will be able to understand the impact of taking this dose of vitamins over time. To achieve this we will need an additional $25,000 so the participants can check in quarterly, the data collected and the analysis completed.
The study was first made possible by a generous donor to Dr. Bonnie Kaplan’s Nutrition & Mental Health Research Fund at the Foundation for Excellence in Mental Health Care.Read More
The Foundation for Excellence in Mental Health Care would like to congratulate the research team coordinated by Drs. Raffaella Pocobello (ISTC-CNR) and Giuseppe Salamina (ASL-TO) who will conduct the Expanding the Science and Practice of Open Dialogue: An international collaborative multicenter research project to evaluate the effectiveness of Open Dialogue in various mental health care contexts around the world.
The Open Dialogue approach to early psychosis is contrasted to the standard practice of immediate diagnosis and prescribing antipsychotic medication for people experiencing early psychosis. While Open Dialogue is growing in practice around the world and shows great promise, studies worldwide are limited and lack systematic application across settings.
This new project, based on an international collaborative process, will produce consistent documentation of Open Dialogue practices across study sites and further our understanding of the challenges and successes of improving the quality of Open Dialogue practice, in particular, how Open Dialogue practices can be advanced in such a way that they are implemented with fidelity to the evidence as they are adapted for local contexts and cultures.
This grant will fund the preparatory phase (year 1) of a three-part work plan. Funds are currently being raised to support year two’s pilot phase and the subsequent main study phase.
Basic Tenets of Open Dialogue
Open Dialogue is one of the most promising approaches for mental health care. It is a family/personal network approach based on the following principles:
EXCELLENCE is an international mental health community foundation which matches private philanthropy to independent research projects and innovative programs that lead to recovery. Our team of donors and volunteers embodies a rich diversity of knowledge and expertise including people with lived experience of our current system of care, family members, psychiatrists and other clinical professionals, researchers, and philanthropists. EXCELLENCE strives to nurture scientific excellence and innovation in mental health research and program support by supporting scientific rigor, trauma-informed care, informed consent, peer support and recovery-based initiatives.Read More
Called “Voices for Choices”, this project aimed to create free and accessible training resources for individuals to advocate for themselves or a loved one at risk for involuntary treatment and for individuals and communities to advocate for system change; to increase advocates’ ability to connect and organize potential allies, and to measurably increase participants’ sense of empowerment as effective agents of change at the community level and with legislators and government agencies. These resources include videos, a handbook and one-on-one mentorship.
The first and unexpected outcome of the grant award was a major donation from an individual inspired by the project. That donation significantly improved MindFreedom’s infrastructure, including staff, capacity for volunteer coordination, and a website revamp.
The Foundation for Excellence in Mental Health Care is pleased to announce this funding opportunity, Expanding the Science and Practice of Open Dialogue: An international collaborative multicenter research project to evaluate the effectiveness of Open Dialogue in various mental health care contexts around the world. This funding opportunity provides for one multi-year award to a single eligible applicant, with the possibility to be renewed annually.
Purpose of award: The Foundation for Excellence in Mental Health Care (EXCELLENCE) is interested in funding a visionary, international research project that will lead to consistent documentation of Open Dialogue practices across study sites, as well as understanding challenges and successes to improve the quality of Open Dialogue practice. Applicants should propose to evaluate Open Dialogue practices in countries including those outside the United States, and be prepared to work with EXCELLENCE to advance our understanding of how Open Dialogue practices can be advanced in such a way that they are implemented with fidelity to the evidence while also being adapted for local contexts and cultures. The Open Dialogue approach to early psychosis is contrasted to the standard practice of immediate diagnosis and prescribing antipsychotic medication for people experiencing early psychosis. While Open Dialogue is growing in practice around the world and shows immense promise, studies worldwide are limited and lack systematic application across settings.
(Wilsonville, OR) – Ronda “Ro” Speight, New York Certified Peer Specialist, is committed to pioneering the advancement of Professional Peer Support in the mental health field. Specifically, helping to define what are “collaborative practices” between peer professionals and traditional mental health professions. Ro has been trained in various peer professional and progressive clinical methodologies, which benefit from integrating the peer professional perspective.
In the interest of this commitment, she has been trained in Social Networking, derived from Open Dialogue, currently aiming to utilize the strengths of both clinical and peer facilitation in the United States. Ro is trained as a Hearing Voices Network Facilitator, which is transforming traditional stigmas and perspectives of voice hearing and other alternative sensory phenomena. She is currently working as a Peer and Recovery Specialist at Mental Health Association (MHA) of Westchester, New York. MHA programs include On Track New York, a comprehensive program for young individuals experiencing first-episode psychosis and the Westchester Recovery Network, a peer-directed in-community peer support program.
Ro is also active in the larger New York community, modeling and applying peer professional competencies in traditional medical model settings. She is currently supporting the peer professional presence at New York Presbyterian Hospital- Westchester Division, developing comprehensive Peer Professional led wellness groups on inpatient units. Ro is enjoying being an agent of positive change after years of trying to personally navigate her identity and purpose through a complicated mental health system.
Laysha Ostrow is the founder and CEO of Live & Learn, Inc., a California-based, consumer-run and woman-owned social enterprise that provides research, technical assistance, and knowledge translation services to behavioral health system stakeholders. She is also an Adjunct Professor in the School of Community and Global Health at Claremont Graduate University and holds a PhD from the Johns Hopkins School of Public Health and a Master of Public Policy from the Heller School for Social Policy and Management at Brandeis University. Laysha completed a Postdoctoral Research Fellowship in the Department of Psychiatry at UCSF and maintains a position there as a Visiting Professional.
She has been an invited speaker at the Carter Center Symposium, the Kennedy Forum on Mental Health, the U.S. Senate HELP Committee’s roundtable to reauthorize the Higher Education Act, and the California Health Facilities Financing Authority. In 2016, Laysha was the recipient of the 2016 Carol T. Mowbray Early Career Research Award from the Psychiatric Rehabilitation Association.
As a person who experienced mental health systems that are often ineffective at promoting recovery and community inclusion, she is passionate about improving these systems through research that advances the use of evidence-based practices in real-world settings.
This Excellence-funded project honors everyone’s potential to be a leader, even those in the back wards of the most restricted psychiatric facilities. It connects people with lived experience of mental health challenges with peer mentors, equipping them to change the system of care in their communities. Sarah Smith at MindFreedom International is the project coordinator.
The first two in a series of recorded webinars are now available online featuring panelists David Oaks, Jim Gottstein, and Emily Cutler in the first and Adrian Bernard, Caroline Mazel-Carlton, and Hilary Melton in the second, presenting their findings from years of working with people in distress.Read More
The team at the Hearing Voices Research and Training Project has been accomplishing great things! The trainers continue to crisscross the country offering multi-day trainings for new facilitators of Hearing Voices peer-support groups, as well as technical assistance after the training to help new groups get up and running. The team also offers a monthly networking call for US group facilitators and a weekly online support group, attended by voice hearers across North and South America. For more information, or to discuss bringing a facilitator training to your community, contact Caroline Mazel-Carlton, Training and Outreach Coordinator: firstname.lastname@example.org.
And since there are still too many communities around the country where the Hearing Voices approach remains unknown, the Project has started awarding mini-grants to community groups to support outreach programs in their local areas. The creativity and diversity of these projects is exciting – look out for upcoming events in Atlanta, Seattle, and Palo Alto. A date for applications for another round of mini-grants will be announced soon.
The Project’s research team is equally hard at work – seeking out the experiences of people around the country who have participated in HVN peer-support groups. The goal of their study is to identify the precise characteristics that make these groups so effective for so many people. With a clearer evidence base, the researchers hope to foster wider acceptance of the Hearing Voices approach among clinicians and other mental health professionals in the US. Dozens of voice hearers around the country have already sent in their responses; if you or someone you know has participated in an HVN group and not yet completed the survey, please check it out at: https://www.ourvoicesraised.org/
And finally, as part of the overall goal of raising the visibility of the Hearing Voices approach across the United States, the Project’s collaborative team of voice hearers, peer workers, and researchers are creating a short film, offering a powerful introduction to the approach through the stories of people whose lives have been changed by participating in HVN groups. Stay tuned for more information, available soon!Read More