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Media Relations Contact

Jessica Pratt
Data & Communications Manager
Phone: 503-515-6884
Email: jessica@femhc.org

News

September 13, 2019 by Foundation for Excellence in Mental Health Care

World Film Premiere – Beyond Possible: How the Hearing Voices Approach Transforms Lives

Learn more and support the Hearing Voices Research & Development Fund.

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September 10, 2019 by Foundation for Excellence in Mental Health Care

DOUBLE THE IMPACT OF YOUR DONATION

During our Matching Gift Challenge

We have some wonderful news – for you and also for the Foundation for Excellence in Mental Health Care.  We have received confirmation that one of our friends and philanthropic partners has stepped forward with a $400,000 Matching Gift Challenge!

If you are able to make a gift between now and October 31st, your contribution will be matched – dollar for dollar – by the Open Society Foundations.  For the next 52 days you can double the impact of your support for connecting philanthropy with the world’s top researchers and programs to bring recovery-based care and supports to every community.

Help us quickly turn this $400,000 gift into $800,000 so that we may continue to make great strides and impact bringing hope to individuals and their families, giving psychiatrists, psychologists and clinicians better tools, giving people better outcomes, and addressing a wide range of society’s challenges, save a great deal of public money and prevent unnecessary human suffering.

Please don’t delay.

 

 

 

 

 

 

 

 

 

 

 

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July 21, 2019 by Christopher Gordon, MD

Reflections on Rome

Kickoff of the New Open Dialogue International Research Collaborative: Hopes for HOPEnDialogue

On July 2 and 3, 2019, I was privileged to attend the first meeting of the HOPEnDialogue International Research Collaborative in Rome.  I attended as a representative of the Board of the Foundation for Excellence in Mental Health Care, along with the Foundation’s President and CEO, Gina Nikkel, and the Foundation’s new Chief Philanthropy Officer, Kevin Aspegren.

The meeting was hosted by the leaders of the project, Raffaella Pocobello and Giuseppe Salamina, and brought together forty representatives from 12 countries, first in an open forum to discuss the goals and overarching strategy of the project, and a second day for the 20 international members of the Advisory Council to address more focused challenges, such as site selection requirements; inclusion/exclusion criteria; training; fidelity; and outcomes.

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May 29, 2019 by Foundation for Excellence in Mental Health Care

Deadline to Register for Kickoff of Open Dialogue International Research Collaborative, Rome, Italy is June 13

As places are limited, please indicate in your registration a short description of your interest in Open Dialogue research and your preference for the working group to attend in the afternoon: Open Dialogue fidelity, research protocol or peer support. Confirmation of participation will be sent out by June 18th.

 

 

This year (2019), the Foundation for Excellence in Mental Health Care has funded the HOPEnDialogue research project to promote and assess the fidelity of Open Dialogue practice and evaluate its effectiveness internationally. HOPEnDialogue, coordinated by the Italian National Research Council, is inspired by and linked to the ODDESSI-study, the first randomized trial of Open Dialogue, ongoing in the UK.

An International Advisory Board involving different stakeholders such as researchers, peer supporters, family members, trainers, Open Dialogue professionals, and experts in public health from eight different countries will contribute to the development of the project and promote its sustainability.

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May 21, 2019 by Foundation for Excellence in Mental Health Care

Psychiatric Medication Discontinuation and Reduction study data now freely available

The dataset for the Psychiatric Medication Discontinuation and Reduction Study is now freely available through Open ICPSR (Inter-university Consortium for Political and Social Research)

The latest article drawing on the study data was published yesterday in Psychosis, An exploratory analysis of the role of social supports in psychiatric medication discontinuation: Results related to family involvement, authored by Laysha Ostrow, Bevin Croft, Anne Weaver, and Sarah Naeger.

Live & Learn, Inc. explains:
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April 12, 2019 by Foundation for Excellence in Mental Health Care

Study of Micronutrients for Bipolar Disorder Seeking Additional Participants, Funding

BANGOR, Maine – A cutting edge study on the effect of micronutrients as a supporting treatment for bipolar disorder is currently underway in Bangor, Maine, led by Lewis Mehl-Madrona, MD, at Northern Light Family Medicine and Residency.

“The purpose of this trial is to determine whether a 36-ingredient micronutrient supplement (primarily vitamins and minerals) and fish oil (omega-3 fatty acid) supplement improves nutritional status and allows lower doses of conventional medications to be effective for bipolar disorder with fewer side effects, when studied under randomized and fully blinded conditions and compared to a placebo.

A follow-up open label phase will allow all participants, including those previously taking the placebo, to try the active micronutrient treatment for an additional twelve months.

Additional Participants Needed

The objective of this study is to assess the effectiveness of a micronutrient supplement + fish oil compared with placebo. To achieve this, the study needs a total of one hundred subjects who complete the first twelve months of the study. The prevalence of this disorder in the general population is only 3% and it has been difficult to recruit sufficient subjects. Researchers need to recruit and enroll an additional fifty people in the study. All participants must live in the vicinity of Bangor, Maine. Those interested in enrolling in the study should contact Edwina at 207.973.9013.

Additional Funding for Open Label Phase Needed

Once the study participants complete the first twelve months of the randomized study they will transition onto the open label phase of the study. This is less intensive but will still involve quarterly check in, data collected and the micronutrient supplement + fish oil dispensed to participants by the researchers.

Our hypothesis is the micronutrients and fish oil improves nutritional status and as we do not know the nutritional baseline of participants at the start the study, the longer we can follow the participants the better we will be able to understand the impact of taking this dose of vitamins over time. To achieve this we will need an additional $25,000 so the participants can check in quarterly, the data collected and the analysis completed.

The study was first made possible by a generous donor to Dr. Bonnie Kaplan’s Nutrition & Mental Health Research Fund at the Foundation for Excellence in Mental Health Care.

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February 13, 2019 by Foundation for Excellence in Mental Health Care

Excellence Awards 2019 Open Dialogue Grant

The new project will be coordinated by the Institute of Cognitive Science and Technology of the Italian National Research Council and realized in collaboration with an international team of Open Dialogue researchers. 

 The Foundation for Excellence in Mental Health Care would like to congratulate the research team coordinated by Drs. Raffaella Pocobello (ISTC-CNR) and Giuseppe Salamina (ASL-TO) who will conduct the Expanding the Science and Practice of Open Dialogue: An international collaborative multicenter research project to evaluate the effectiveness of Open Dialogue in various mental health care contexts around the world. 

The Open Dialogue approach to early psychosis is contrasted to the standard practice of immediate diagnosis and prescribing antipsychotic medication for people experiencing early psychosis. While Open Dialogue is growing in practice around the world and shows great promise, studies worldwide are limited and lack systematic application across settings.

This new project, based on an international collaborative process, will produce consistent documentation of Open Dialogue practices across study sites and further our understanding of the challenges and successes of improving the quality of Open Dialogue practice, in particular, how Open Dialogue practices can be advanced in such a way that they are implemented with fidelity to the evidence as they are adapted for local contexts and cultures.

This grant will fund the preparatory phase (year 1) of a three-part work plan. Funds are currently being raised to support year two’s pilot phase and the subsequent main study phase.

Basic Tenets of Open Dialogue
Open Dialogue is one of the most promising approaches for mental health care. It is a family/personal network approach based on the following principles:

  • provision of immediate help
  • social network perspective
  • flexibility and mobility of treatment
  • responsibility
  • psychological continuity
  • tolerance of uncertainty
  • dialogue and polyphony

EXCELLENCE is an international mental health community foundation which matches private philanthropy to independent research projects and innovative programs that lead to recovery. Our team of donors and volunteers embodies a rich diversity of knowledge and expertise including people with lived experience of our current system of care, family members, psychiatrists and other clinical professionals, researchers, and philanthropists. EXCELLENCE strives to nurture scientific excellence and innovation in mental health research and program support by supporting scientific rigor, trauma-informed care, informed consent, peer support and recovery-based initiatives.

Principle investigators can be reached at Guiseppe Salamina giuseppe.salamina@aslcittaditorino.it and Raffaella Pocobello raffaella.pocobello@istc.cnr.it.

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December 30, 2018 by Foundation for Excellence in Mental Health Care

Final Report: “Voices for Choices” Grant Project

MindFreedom International was awarded a one-year grant in the fall of 2017 to create educational web-based resources for “training effective advocates for choice.”

Project Aims
Called “Voices for Choices”, this project aimed to create free and accessible training resources for individuals to advocate for themselves or a loved one at risk for involuntary treatment and for individuals and communities to advocate for system change; to increase advocates’ ability to connect and organize potential allies, and to measurably increase participants’ sense of empowerment as effective agents of change at the community level and with legislators and government agencies. These resources include videos, a handbook and one-on-one mentorship.

Outcomes
The first and unexpected outcome of the grant award was a major donation from an individual inspired by the project. That donation significantly improved MindFreedom’s infrastructure, including staff, capacity for volunteer coordination, and a website revamp.

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November 19, 2018 by Foundation for Excellence in Mental Health Care

Request for Proposal: Expanding the Science and Practice of Open Dialogue

Expanding the Science and Practice of Open Dialogue: An international collaborative multicenter research project to evaluate the effectiveness of Open Dialogue in various mental health care contexts around the world. Applications due January 2, 2019.

Overview

The Foundation for Excellence in Mental Health Care is pleased to announce this funding opportunity, Expanding the Science and Practice of Open Dialogue: An international collaborative multicenter research project to evaluate the effectiveness of Open Dialogue in various mental health care contexts around the world.  This funding opportunity provides for one multi-year award to a single eligible applicant, with the possibility to be renewed annually.

Purpose of award: The Foundation for Excellence in Mental Health Care (EXCELLENCE) is interested in funding a visionary, international research project that will lead to consistent documentation of Open Dialogue practices across study sites, as well as understanding challenges and successes to improve the quality of Open Dialogue practice. Applicants should propose to evaluate Open Dialogue practices in countries including those outside the United States, and be prepared to work with EXCELLENCE to advance our understanding of how Open Dialogue practices can be advanced in such a way that they are implemented with fidelity to the evidence while also being adapted for local contexts and cultures. The Open Dialogue approach to early psychosis is contrasted to the standard practice of immediate diagnosis and prescribing antipsychotic medication for people experiencing early psychosis. While Open Dialogue is growing in practice around the world and shows immense promise, studies worldwide are limited and lack systematic application across settings.

Download Full RFP (pdf)

 

 

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October 29, 2018 by Gina Nikkel, PhD, President & CEO

Big News! Announcing our new partnership with Open Society Foundations

We are so excited to finally get to tell you about the conversations we’ve been having for a couple of years now with folks at Open Society Foundations. OSF is well known internationally for its aim of “advancing justice, education, public health and independent media”. In 2016, that aim began focusing in on mental health and OSF reached out to the Foundation for Excellence in Mental Health Care to look for common ground and opportunities for partnership.
We are now ready to cement that partnership with a three-year matching grant of $2.8M! It is a sustaining grant beginning in 2019 through 2021 to continue the good work that our visionary donors have been pioneering for the last eight years, including international study and development of Open Dialogue, Hearing Voices training, and independent professional mental health reporting.
We’ve already made a lot of progress toward securing the needed $800K match for 2019, but we still have $125K to raise in donations and pledges before the deal is closed!
How important is this work to you? Who in your life needs the work of the Foundation to continue? I myself have too many dear friends and family to name, some lost and some still fighting. But my own pledge for 2019 is a legacy I hope to leave my grandchildren, a world where people experiencing mental health challenges are empowered to make informed, effective choices for their care and are treated with dignity and respect. We can create that world together.
Please check out the different ways you can pitch in: Donate nowbecome a monthly sustaining partnerpledge to give later, or start your own fundraiser to invite friends and family into this exciting, life-giving work! And thank you!
P.S. Stay tuned for developments! We expect to see some fun, creative ways our donors will use their talents to bring new friends to the Foundation and we’ll hear from some of the amazing folks doing the good work you all are making possible.
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  • Yana Jacobs, MFT

    Yana Jacobs, MFT

    Santa Cruz, CA Download
  • Gina Nikkel, PhD

    Gina Nikkel, PhD

    Wilsonville, OR Download